Typical experiences and perceptions
Typical communication during a clinical trial was weekly (46%).
of those who had participated in a clinical trial felt that the level of communication was sufficient, rating it was 'about right.'
Regardless of the frequency of communication, a majority of participants were satisfied with this.
However, note that over a third (34%) of those receiving communication less often than monthly felt that this was insufficient.
Fewer than 40% of those who had participated in a clinical trial had received the results of the trial.
Results were typically received via email (17% of all those who had participated in a clinical trial) or at the physical trial site itself (10%).
*including verbally, typically from a physician.
64% of those who had already participated in a clinical trial felt that is was important that they received the study results
Among potential participants, the importance of receiving study results was even greater, with 88% regarding this as important.
Receiving trial results was consistently regarded as important by a majority of individuals within all demographic characteristics.
This was a feeling that peaked among the following groups of trial participants:
Females
Those aged 65+
People of color
Those who had completed some college